World Bladder Cancer Patient Coalition

The World Bladder Cancer Patient Coalition are meeting in Barcelona on Monday 18 March and BCACF founder and board member Tony Moore has been invited to join bladder cancer patient representatives from:

After the closed meeting of bladder cancer patient organisations there will be a public launch with speakers from the European Association of Urology, the International Kidney Cancer Coalition, the University of British Columbia, and the US National Cancer Institute.

Invite your colleagues attending EAU to register for the public launch.

Dates for your diary

18 March 2019: World Bladder Cancer Patient Coalition meeting in Barcelona
1 May 2019: Launch of Bladder Cancer Awareness Month
12 May 2019: International Nurses Day
19 May 2019: Bubbles for Bladder Cancer Day
31 May 2019: End of Bladder Cancer Awareness Month

Given that bladdercancer.org.au will now be able to assist other organisations with international programs we look forward to launching International Bladder Cancer Awareness month in May and ask you to get ready to support it!

Think Tank attendees 2018

Think Tank 2018: Bigger and Better than ever!

Earlier this month, our board member Dr Stephanie Demkiw was fortunate enough to attend the BCAN Think Tank in Denver, Colorado – a meeting that brings together 250 of the top medical and scientific minds in bladder cancer.

The meeting opened with a session for patient advocates. This included approximately 30 patients, many of which have undergone neobladder or ileal-conduit surgery and whose stories and experience are vital to drive the yearly Think Tank.

The following two days focused on research and medical advances in potential treatments for bladder cancer. The main focus of these sessions was ~

  1.  The microbiome and its contribution to cancer and bladder disease.
  2. Solving the clinical trials conundrum.
  3. Upper Tract Urothelial Carcinoma (UTUC): From improvisation to research-driven care.

Stephanie was also an active participant in the Survivorship Working Group, where bladder cancer survivors and patient advocates actively brainstormed toward improved (and importantly, practical) resources for patients and their families.

The meeting was a huge success and we cannot wait to share more in coming weeks!

(L-R ) International patient advocates Elin, Stephanie, Ferg and Ranveig from Norway, Australia, Canada and Norway respectively.
(L-R ) International patient advocates Elin, Stephanie, Ferg and Ranveig from Norway, Australia, Canada and Norway respectively.

 

UroGP conference 2018

UroGP LogoLast weekend the BladderCancer.org.au team were at the UroGP conference at Melbourne Convention Centre.  As usual our publications were very popular and we are almost sold out of both of our booklets now.

That is now 4,000 booklets in doctor’s, patient’s and nurse’s hands and another 1,000 are now in production.  Our “Bloody Piss” posters were also very popular.  You can download all these publications on our website or email us for more copies.  Our new BC Patient Care Plan was extremely popular.

Both our founders spoke to delegates.  A/Prof Nathan Lawrentschuk was in several sessions and Tony Moore spoke to over 150 nurses about his NeoBladder and our charity.

For everyone who was there, we look forward to seeing you next year and giving you another chance to win a nice guitar!

Tony Moore at UroGP 2018
Tony Moore at UroGP 2018