Last year on October 26th, I lost my dad to small cell carcinoma of the bladder which in case you didn’t know is very rare.(more…)
By Marc Diocera
Group Coordinator, VUNS Bladder Cancer Group
Genitourinary Nurse Consultant, Peter MacCallum Cancer Centre
The Victorian Urological Nurses Society (VUNS) Bladder Cancer Specialist Interest Group (SIG) is a sub-speciality group of advanced practice nurses caring for patients with bladder cancer.
The group was originally formed by Victorian urology nurses in 2013 to address the issues that nurses faced during the 2012 global BCG shortage.(more…)
We will also be giving out free copies at our booth at USANZ20 from March 7 to 10 2020.
BCACF will be at USANZ20 in Sydney with the 2020 edition of our Bladder Cancer booklets.
USANZ20 is an Annual Scientific Meeting facilitated by The Urological Society of Australia and New Zealand (USANZ) and this year is being held at the INTERNATIONAL CONVENTION CENTRE (ICC) in Sydney between the 7th and 10th of March.
If you visit us at our booth you will be in with a chance to win this cool guitar!
“While the relative survival (survival compared to a healthy individual of similar age) for most other cancers has improved in Australia, for bladder cancer this has decreased over time.”
Professor of Surgery at Monash University Shomik Sengupta writes about how bladder cancer has a lower profile compared to other types of cancer despite it affecting almost 3,000 Australians each year causing thousands of deaths.
International Bladder Cancer Awareness month
International Bladder Cancer Awareness month starts today! Throughout the month of May, we will be working double time to make the community #BladderCancerAware!
We hope everyone takes some time during May to highlight Bladder Cancer in your workplace, on your social media, with your friends, at clubs… anywhere you can! Start the conversation today on bladder cancer.
Recent International Statistics suggest more than 40% of Bladder Cancer patients don’t survive. We can save so much heartache through early diagnosis. So let’s all get the “Blood in pee” message out loud and clear in May.
The official hashtag for Bladder Cancer Awareness month is #BladderCancerAware ~ please use it on your Twitter, Facebook and Instagram in May!
Bladder Cancer Awareness Poster
We have created a new A4 poster you can download and print or we can post you copies – please email the team at firstname.lastname@example.org
Walk For Dan
Our efforts in May will culminate in the epic Walk For Dan on Sunday May 26th in Melbourne. Register now at www.bladdercancer.org.au/WalkForDan. A brisk Sunday walk (4.2km) and you’ll be home for Sunday lunch! Please come and support this great initiative.
The Urological Society of Australia and New Zealand (USANZ) is the peak professional body for urological surgeons in Australia and New Zealand.
APSSM 2019 11 – 13 April 2019
USANZ/ANZUNS 2019 begins 13 -16 April 2019
Registration and information: www.usanz2019.com
Come and see us on our booth; just left of the main entrance.
We will have stock of booklets, posters, care plan sheets and more for you to take home. As usual, we will be giving away a guitar to a delegate or exhibitor.
This year The School Locker has contributed an amazing instrument – the EKO Ranger 6 string acoustic with pickup & EQ. In the late 60’s and 70’s this instrument was a key component of most UK recording studios. Used live and in the studio by Jimmy Page, Eric Clapton, Jethro Tull, Mick Taylor (Rolling Stones) the instrument had an excellent live and recording sound when mic’d up. You can hear a lot of this guitar on Led Zeppelin 1,2 & 3, Blind Faith, Thick as a Brick and countless other London session records of the time. Re created from the original with modern electronics. Same Italian company manufacturing internationally.
Come along and put your name in to win!
We are delighted to advise that, at its meeting on March 28, the interim board of the World Bladder Cancer Patient Coalition unanimously approved the admission to membership of ActionBladderCancer (UK), Bladder Cancer Australia Charity Foundation and Associazionepalinuro (Italy). Together with BCAN (USA), Bladder Cancer Canada, Fight Bladder Cancer UK, Norwegian Bladder Cancer Society and Les Zuros France, the coalition now has a solid core of strongly engaged members.
Our co-founder Tony Moore comments: “We need the loudest possible voice to start reducing mortality from the deadly disease of bladder cancer. Many other charities and patient support groups around the world are realising that together is better, and this new coalition aims to give support to all the people around the world trying to help bladder cancer patients and promote awareness of the disease. I am personally very excited to be involved, and look forward to contributing.”
The World Bladder Cancer Patient Coalition are meeting in Barcelona on Monday 18 March and BCACF founder and board member Tony Moore has been invited to join bladder cancer patient representatives from:
- Action Bladder Cancer, UK
- Bladder Cancer Advocacy Network, US
- Bladder Cancer Australia
- Bladder Cancer Canada
- Fight Bladder Cancer, UK
- Les Zuros, France
- Norwegian Bladder Cancer Society
- PaLiNUro, Italy
After the closed meeting of bladder cancer patient organisations there will be a public launch with speakers from the European Association of Urology, the International Kidney Cancer Coalition, the University of British Columbia, and the US National Cancer Institute.
|Dates for your diary|
18 March 2019: World Bladder Cancer Patient Coalition meeting in Barcelona
1 May 2019: Launch of Bladder Cancer Awareness Month
12 May 2019: International Nurses Day
19 May 2019: Bubbles for Bladder Cancer Day
31 May 2019: End of Bladder Cancer Awareness Month
Given that bladdercancer.org.au will now be able to assist other organisations with international programs we look forward to launching International Bladder Cancer Awareness month in May and ask you to get ready to support it!
Earlier this month, our board member Dr Stephanie Demkiw was fortunate enough to attend the BCAN Think Tank in Denver, Colorado – a meeting that brings together 250 of the top medical and scientific minds in bladder cancer.
The meeting opened with a session for patient advocates. This included approximately 30 patients, many of which have undergone neobladder or ileal-conduit surgery and whose stories and experience are vital to drive the yearly Think Tank.
The following two days focused on research and medical advances in potential treatments for bladder cancer. The main focus of these sessions was ~
- The microbiome and its contribution to cancer and bladder disease.
- Solving the clinical trials conundrum.
- Upper Tract Urothelial Carcinoma (UTUC): From improvisation to research-driven care.
Stephanie was also an active participant in the Survivorship Working Group, where bladder cancer survivors and patient advocates actively brainstormed toward improved (and importantly, practical) resources for patients and their families.
The meeting was a huge success and we cannot wait to share more in coming weeks!
Last weekend the BladderCancer.org.au team were at the UroGP conference at Melbourne Convention Centre. As usual our publications were very popular and we are almost sold out of both of our booklets now.
That is now 4,000 booklets in doctor’s, patient’s and nurse’s hands and another 1,000 are now in production. Our “Bloody Piss” posters were also very popular. You can download all these publications on our website or email us for more copies. Our new BC Patient Care Plan was extremely popular.
Both our founders spoke to delegates. A/Prof Nathan Lawrentschuk was in several sessions and Tony Moore spoke to over 150 nurses about his NeoBladder and our charity.