Hi Everyone, We’ve had an impact at the Urological Society of Australia and New Zealand Convention in Canberra over the weekend with our new Bladder Cancer booklet. We’ve done ABC Radio interviews & ABC news posts. Professor Nathan Lawrentschuk and I have both done interviews for TV. We might be on ABC News tonight. We […]
In Memory of George Nelson
My husband George was a loving 56 year old father of two teenage sons when he was diagnosed with invasive bladder cancer in October 2014. We struggled with finding the “centre of excellence for bladder cancer treatment” in Australia, and his treatment was marred by miscommunication, delays and mishaps. The final being infection contracted during […]
Not just a smoker’s or a man’s disease.
I was only about 40 when I started to experience haematuria and severe pain when urinating. My GP prescribed course after course of antibiotics, none of which made any difference and when I pointed out the fact that my urine tests consistently identified blood she explained it away by the fact that I either had […]
NeoBladder for 5 years
Male. Surgery age 56. I have had my NeoBladder for 5 years. Complications with surgery resulted in a long stint in hospital, and a very long recovery. I also had a lot of trouble with diarrhoea and still medicate daily to keep this in check. As to continence, I wear pads to catch drips, but […]
Had prostate cancer treated previously with radiation
Previously had prostate cancer treated with radiation. Unfortunately due to side effects including the development of bladder cancer he had to have his bladder and prostate removed. A neobladder was not possible due to radiation damage to his urinary sphincter. The patient chose a pouch. He is very happy apart from the odd urinary infection. […]
Elected to have an ileal conduit as it was simpler
Is a 62 year-old female from regional Australia. She lives 6 hours from a major hospital. She elected to have an ileal conduit as it was “simpler” and suited her lifestyle and location. Her cancer had spread to a lymph node prior to surgery and she had chemotherapy before surgery (neoadjuvant chemotharapy). She has recovered […]
77 year-old gentleman with blood in the urine
Is a retired 77 year-old gentleman from a metropolitan area who presented to his GP with blood in the urine (haematuria). On top of this he was getting up frequently at night to pass urine for many years and this had worsened prior to him noticing the blood. His staging scans were negative. Ultimately he […]
Recurrent noninvasive bladder cancer over three years
I had recurrent noninvasive bladder cancer over three years. After multiple recurrences and resections my urologist decided to administer a 6 week course of BCG. I did have significant symptoms which at least meant meant I was responding. I had one urine infection which delayed my overall course – but eventually the treatment finished. There […]
“CIS only” of the bladder
I had “CIS only” of the bladder. The BCG course went pretty well. I had some urinary frequency and urgency. At that time maintenance therapy was limited but I went through twelve months. That was also OK. I have been having check cystoscopies 3 monthly then 6 monthly and now annually since and I remain […]