Hi I am 71 and recently had my cancer removed from my bladder. I am now undergoing pembrolizumab treatment for bladder cancer. After that I expect to have my bladder removed. Now I have been very nervious about this. The Cancer Doctors say the treatment is good. And the surgeons say after removal is the […]
Patient Stories
Peeing
I have had low grade bladder cancer for five years. the last time they operated on me because I could not pee. I have become inconvenient I think they have opened up my bladder ureatha opening too much. people’s thoughts would be appreciated. I am a bit iliterate in spelling help would be appreciated.
Recurring tumors
Hi all,My name is Nancy and I was diagnosed with grade 2 Bladder Cancer in 2019, due to my numerous health issues, this was something extra I did not need. I started off with 6 monthly cystoscopies, but in early 2022 I was to have 3 monthly cystoscopies and scrapings and 6 weeks later I […]
Bladder removal
I have to have my bladder removed plus nymph gland and all other parts attached to bladder. I’m not looking forward to this at all but believe I have to have it done to get rid of this awful cancer. Would love to hear from those who have had this done and how they coped […]
My dad’s story
In April 2021 dad went to his GP as he was urinating blood. An ultrasound determined the presence of bladder lesions and he was immediately referred to a urologist. A biopsy in June 2021 confirmed dad had bladder cancer that penetrated the muscle. A very aggressive small cell carcinoma. The urologist consulted an oncologist who […]
Micropapillary Carcinoma Bladder Cancer
After several GP visits and Urologist visits for frequent and painful urination it wasn’t until almost six months later my husband was diagnosed with Stage IV bladder cancer on 27/5/21. It was a very rare and aggressive form known as Micropapillary Carcinoma Bladder Cancer. His treating Urologist hadn’t seen this type since 2006 and his […]
Is Uribel, or equivalent, available in Australia?
Hi – reading the forums – seems that in the US a lot of people have success with Uribel relieving post BCG discomfort. Seems it is not available in Australia – does anyone know if there is an equivalent available here? Wombat 48
Dementia and Bladder Cancer
Mum was diagnosed with Dementia in Oct 2019, things were getting a little confusing for her for some time prior. Sadly her awareness and vigilance to what was to come was challenged. I noticed considerable swelling to her right leg and ankle, followed this up with her GP and later her doctor at Peter Mac […]
RC in October
I was diagnosed in Dec 2018. Throughout 2019 I had BCG treatment which was unsuccessful getting recurrences high grade superficial. In 2020 I had 6 rounds of gemcitabine had more recurrence. I decided to have RC in October now going well with a stoma getting results next week. Lance Shakespeare
Recommendation for Melbourne Urologist?
Hi I have been diagnosed with bladder cancer, and have started BCG treatment – so far it seems to be going quite well. Reading the (mostly USA based) forums to try to improve my knowledge of the disease – it seems to me that in the US the urologists often team up with oncologists in […]
Cancer shock
I was diagnosed in February 2020 with Urothelial Carcinoma in my left kidney. I was 55 years old, female, very fit, never smoked and rarely drank. My husband and I were booked to go on a cruise the coming Saturday, but my oncologist said chemotherapy had to start straight away. Late 2019 i had consistent […]
Large cell neuroendocrine tumor in the bladder.
Hi everyone, my father has recently been diagnosed with large cell neuroendocrine carcinoma in the wall of his bladder. He is due to have a radical cyctectomy which will include taking the prostate and neighbouring lymph nodes next Tuesday. His treatment options afterwards are very slim as he has acute renal failure which he was […]