May is Bladder Cancer Awareness month. An easy way to show your support and help promote this important Bladder Cancer Awareness campaign is to add the campaign and hash tag to your profile image on your social media account during May. Our very good friends at The World Bladder Cancer Patient Coalition have created a […]
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Is Uribel, or equivalent, available in Australia?
Hi – reading the forums – seems that in the US a lot of people have success with Uribel relieving post BCG discomfort. Seems it is not available in Australia – does anyone know if there is an equivalent available here? Wombat 48
Dementia and Bladder Cancer
Mum was diagnosed with Dementia in Oct 2019, things were getting a little confusing for her for some time prior. Sadly her awareness and vigilance to what was to come was challenged. I noticed considerable swelling to her right leg and ankle, followed this up with her GP and later her doctor at Peter Mac […]
RC in October
I was diagnosed in Dec 2018. Throughout 2019 I had BCG treatment which was unsuccessful getting recurrences high grade superficial. In 2020 I had 6 rounds of gemcitabine had more recurrence. I decided to have RC in October now going well with a stoma getting results next week. Lance Shakespeare
Recommendation for Melbourne Urologist?
Hi I have been diagnosed with bladder cancer, and have started BCG treatment – so far it seems to be going quite well. Reading the (mostly USA based) forums to try to improve my knowledge of the disease – it seems to me that in the US the urologists often team up with oncologists in […]
BladderCancer.org.au Newsletter – Spring 2020
THE SUPPORT ISSUE With so many Australians still in lockdown due to the pandemic, caring for each other is so important. Think about someone who might be of concern to you, and phone them, shoot them an email or send them a text. In this issue, we want to highlight a few tools to help […]
The World Bladder Cancer Patient Coalition August newsletter is out now.
The WBCPC August newsletter highlights news from WBCPC and members across the world. Read it here.
Small Cell Carcinoma of the Bladder
Last year on October 26th, I lost my dad to small cell carcinoma of the bladder which in case you didn’t know is very rare.
Victorian Urological Nurses Society (VUNS) Bladder Cancer Group – An Overview
By Marc DioceraGroup Coordinator, VUNS Bladder Cancer GroupGenitourinary Nurse Consultant, Peter MacCallum Cancer Centre The Victorian Urological Nurses Society (VUNS) Bladder Cancer Specialist Interest Group (SIG) is a sub-speciality group of advanced practice nurses caring for patients with bladder cancer. The group was originally formed by Victorian urology nurses in 2013 to address the issues […]
Cancer shock
I was diagnosed in February 2020 with Urothelial Carcinoma in my left kidney. I was 55 years old, female, very fit, never smoked and rarely drank. My husband and I were booked to go on a cruise the coming Saturday, but my oncologist said chemotherapy had to start straight away. Late 2019 i had consistent […]
Large cell neuroendocrine tumor in the bladder.
Hi everyone, my father has recently been diagnosed with large cell neuroendocrine carcinoma in the wall of his bladder. He is due to have a radical cyctectomy which will include taking the prostate and neighbouring lymph nodes next Tuesday. His treatment options afterwards are very slim as he has acute renal failure which he was […]