BCACF Newsletter – Spring 2020

THE SUPPORT ISSUE

With so many Australians still in lockdown due to the pandemic, caring for each other is so important. Think about someone who might be of concern to you, and phone them, shoot them an email or send them a text.

In this issue, we want to highlight a few tools to help bladder cancer patients, their loved ones and medical professionals.

NEO BLADDER VS ILEAL CONDUIT SURVEYS

We have 5 years of data from over 300 surviving bladder cancer patients who have been through radical cystectomy. Data updated this week. This has been a great help to many people facing this decision.

BRAVING CHEMO

This new book by Beverly A Zavaleta MD, is getting the thumbs up on many social media pages. Beverly is a doctor who became a cancer patient. It’s a book about how to care for yourself in order to feel better when undergoing chemotherapy. You can get a free preview on Google Books.

TIPS FOR CAREGIVERS

The big US Bladder Cancer Group – Bladder Cancer Advocacy Network (BCAN) – has released a great new booklet for care givers.

PATIENT GUIDEBOOKS

If you or your practice need more Bladder Cancer Patient Guidebooks, Urinary Diversion booklets, Patient Care Plans, “Blood in Pee” posters, just drop us a line at contact@bladdercancer.org.au

FACEBOOK GROUPS

If you are into Social Media there are two very good patient support groups for Bladder Cancer. Look for Bladder Cancer Support – Australia / New Zealand and for men only search: Mens Bladder Cancer and Prostate Support Group.

WE ALL COPE IN DIFFERENT WAYS

Covid is a bust. I heard this song on ABC National Radio. A real Aussie song, simple, heartfelt and touching. It’s a really good tune, to bring a little bit of light into a dark room.

AUSTRALIAN DIRECTORY OF BLADDER CANCER EXPERTS

If you are often working with Bladder Cancer patients, you should register on our directory. It’s free of charge. Our web site gets thousands and thousands of visitors so its a great way for patients to find professionals in their area.

UROLOGY NURSES

Anyone involved with Bladder Cancer knows how important Urology Nurses are. The Victorian Urology Nurses Society is very active and in the following link you can read about their bladder cancer speciality group and view a summary of their recent survey.

ROYAL MELBOURNE HOSPITAL UPCOMING STUDY

The Royal Melbourne Hospital upcoming study on CG Oncology NMIBC oncolytic adenovirus (CG-0070) will take place in 2020/21. This intravesical treatment is being studied as a possible adjunct to bladder cancer treatments along side BCG or as a seperate treatment for BCG-unresponsive patients.

COVID IMPACT ON CHARITIES

On an International level, the World Bladder Cancer Patient Coalition, together with other Global Cancer Patient Organisations, have published an extensive document on how COVID has impacted charities.

DONATIONS

We get no Government funding. We rely on your donations to allow us to keep sending out booklets to patients and doctors; to allow us to keep pushing for greater awareness of Bladder Cancer; to allow us to keep helping thousands of people every month. Please send us a little donation. Do it now!

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