Come and see us at USANZ20 in Sydney 7-10 March

BCACF will be at USANZ20 in Sydney with the 2020 edition of our Bladder Cancer booklets.

USANZ20 is an Annual Scientific Meeting facilitated by The Urological Society of Australia and New Zealand (USANZ) and this year is being held at the INTERNATIONAL CONVENTION CENTRE (ICC) in Sydney between the 7th and 10th of March.

If you visit us at our booth you will be in with a chance to win this cool guitar!

BCACF Newsletter – February 2020

Hi everyone and welcome to our first newsletter for the year.

New Facebook – Please re-follow!

We lost our Facebook pages and have had to start again! Please friend us and follow us on our new official and authorised Facebook page:

Friend and follow us on Facebook

Today is World Cancer Day!  (Feb 4th)

Today, the 4th of February, is World Cancer Day, Please take a minute to look at the World Cancer Day website: www.worldcancerday.org

And if you are thinking “What can I do today to help a cancer organisation?”  you might consider sending us a small donation:

www.bladdercancer.org.au/donations

World Bladder Cancer Patient Coalition Newsletter

World Bladder Cancer Patient Coalition

The WBCPC newsletter is out now. If you are not on the WBCPC newsletter mailing list you can take view the current newsletter on-line. This installment includes:

  • WBCPC Annual Meeting (22 March Amsterdam)
  • Out with Cancer Study
  • WBCPC joins All.Can International
  • Year of the Nurse and the Midwife 2020
  • European Cancer Forum
  • and more

Read the WBCPC January 2020 newsletter

USANZ in Sydney (March 7th-10th)

USANZ 2020 in Sydney

Come and see us at USANZ in Sydney 7-10 March 2020

We will be exhibiting with a good supply of booklets as well as this unique guitar for some lucky visitor to win and take home!  

More info at usanz2020.com

Unique guitar for USANZ 2020 in Sydney

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Australia’s high rates of bladder cancer deaths show why blood in urine should always be investigated

“While the relative survival (survival compared to a healthy individual of similar age) for most other cancers has improved in Australia, for bladder cancer this has decreased over time.”

Professor of Surgery at Monash University Shomik Sengupta writes about how bladder cancer has a lower profile compared to other types of cancer despite it affecting almost 3,000 Australians each year causing thousands of deaths.

Read the full article at The Conversation.

November 2019 – The Men’s Issue!

Hi everyone and welcome to our final newsletter for the year. This issue has a bit of a focus on male issues.

Over the last few months we have attended UROGP, prepared yet another print run of Bladder Cancer Patient Guidebooks, been active on Facebook helping people where we can, and continued to be the number one source of information for Bladder Cancer patients in Australia with over 9,000 unique visitors to our site and over 400 booklet downloads and mailings to patients and medicos.

We get no government funding, so how about giving us a leg up and making a Christmas donation?

DONATE NOW

World Bladder Cancer Patient Coalition Newsletter

WBCPC

World Bladder Cancer Patient Coalition Newsletter just released. The coalition is progressing strongly with the appointment of a CEO. This October newsletter has a lot of great information for patients and doctors. Well worth a read.

Read the World Bladder Cancer Patient Coalition Newsletter

Mens Bladder Cancer & Prostate Support Group.

The Mens Bladder Cancer & Prostate Support Group is a new private facebook group for MEN ONLY that has sprung up and it is absolutely fantastic. We know that men out number women as bladder cancer patients, and the delicate subject of sexuality is not easy to discuss for many. In a male only group there are lots of good discussions going on.

Join up if you are interested.

Wiesner Incontinence Clamp

We are not recommending this clamp or recommending clamps in general. That is a discussion for you to have with your doctors. But if you are using a clamp to help with incontinence, which is an issue for many neo bladder patients, some men report this new one is REALLY COMFORTABLE, works well and has 4 size settings.

You can order it from www.menshealthphysiotherapy.com.au

Photo of Wiesner Incontinence Clamp

New EZ Print Bladder Cancer Care Plan

Care Plan Printable version

This sheet has been so popular with urologists, oncologist, stomal therapists, urology nurses and bladder cancer patients. But people were complaining it was too colourful to print out so we have created a new lighter colour, EZ print version.

You can get it here or via the website.

Have a great Christmas everyone.

Tony Moore

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By the way I sweat a lot …

2015 I went to my GP … hoping to scam some penicillin to clear up a chest cough.
As an after thought I told her that I have had random bouts of severe sweating episodes on and off for a few years – there appeared to be no pattern to it.
She said it could be a heart issue and began to send me off to a cardiologist.
Then she said would I mind doing a 24 Hour urine test just to eliminate something a bit weird.
The test was positive – excessive adrenaline … a possible benign tumour on my kidney.
CAT scan finds nothing on my kidneys but 4 tumours in my bladder.
Lists more tests to eliminate Pheochromacytomas … none!
TURB and bladder burned (ouch!) a ureter got nicked …. big ouch … emergency nephrostomy … scary and a stent
Waited six weeks to find out whether I keep my bladder & kidney .. phew!
Then three years of BCG treatment …. and given an all clear
A lifetime of regular cystoscopies but all is going well.
Sheer dumb luck …. I asked a wacky question, I had a thorough GP and a talented urologist.

Brett

Walk For Dan (Sunday), BCAN news and Bubbles for Bladder Cancer

Load images to see Walk For Dan 2019 route

Walk for Dan is this Sunday! There is still plenty of time to register or donate!

Walk For Dan this Sunday May 26th in Melbourne – More info and route.

Help us reach our goal of $10,000 to go toward life-changing urological research.

Check the current donation tally here.

REGISTER OR DONATE NOW

BCAN USA updates

Our friends at BCAN in the USA have been really busy. A new patient survey for bladder cancer patients and carers, plus they are working on a US$10 million grant for bladder cancer research from the US Government.

BCAN have launched a new survey.

If you are a bladder cancer patient, survivor or carer, please do the survey.

The results of the survey will be shared anonymously and will be used to create decision-making tools and patient education materials that could help newly diagnosed bladder cancer patients and caregivers better understand the impact of bladder cancer and its treatment.

BCAN in line for $10 million grant.

The U.S. House Appropriations Committee released its report for funding in fiscal year 2020 for the Defense Appropriations Act. The report recommends $100 million in funding to conduct peer-reviewed research into a number of cancers and bladder cancer is listed first for up to $10 million. BCAN has been at the forefront of advocating for increased funding for research into this sixth-most diagnosed cancer in the United States. The funding request is just that for now – a request – and the bill needs to be approved by both the House and Senate and signed by the President to become law.

BCAN Mailing List

It’s so important we all work together to solve the bladder cancer puzzle.
Join the USA BCAN mailing list. Bubbles for Bladder Cancer

May 19th was #BubblesForBladderCancer day! A day in which we blow bubbles with our friends and families to remember those we have lost to bladder cancer. Our patient advocacy group BCA Australia organised a national bubblethon to mark this special day!

More photos on the BCA Australia Facebook page.

BubblesForBladderCancer Images

My journey starts today

I had blood in my urine 3 months ago so went to emergency department of hospital. They did blood tests, found nothing, urine cleared up – they booked me in for cystoscopy in a months time. 3 weeks later more blood so went back to hospital – doctor told me was “probably bladder cancer” but it is typically “very slow growing so no harm in waiting a week to check” I had an MRI on that day – after waiting 8 hours, I was told no tumors detected and bleeding was enlarged prostate – I was relieved. A week later I went in for cystoscopy even though was convinced there was no need. As I watched the camera go in live on the screen I saw the smooth bladder wall and then strange branch like growths. The doctor says “That’s a tumour”. This happened about 5 hours ago so I am still processing things. Hopefully surgery will happen next week and I will take it from there. I am scared and not convinced that doctors know what they are doing.

May is International Bladder Cancer Awareness month

Bladder Cancer Awareness month ready for lift off

May is International Bladder Cancer Awareness month

International Bladder Cancer Awareness month starts today! Throughout the month of May, we will be working double time to make the community #BladderCancerAware!

Our charity will be contacting many of you directly by email or telephone during the month to connect our efforts with yours. We hope that you can take some time during May to highlight Bladder Cancer in your workplace, on your social media, with your friends, at clubs… anywhere you can! Start the conversation today on bladder cancer.

Recent International Statistics suggest more than 40% of Bladder Cancer patients don’t survive. We can save so much heartache through early diagnosis. So let’s all get the “Blood in pee” message out loud and clear in May.

Bladder Cancer Awareness Poster

We have created a new A4 poster you can download and print here… or we can post you copies – please email the team at contact@PROTECTED

Bladder Cancer Awareness poster

The Official Hashtag

The official hashtag for Bladder Cancer Awareness month is #BladderCancerAware ~ please use it on your Twitter, Facebook and Instagram in May!

Check the #BladderCancerAware trend on your platform now: Twitter, Facebook, Instagram

Walk For Dan

Our efforts in May will culminate in the epic Walk For Dan on Sunday May 26th in Melbourne. Register now at www.balddercancer.org.au/WalkForDan. A brisk Sunday walk (4.2km) and you’ll be home for Sunday lunch! Please come and support this great initiative.

Walk For Dan 2019 route image

USANZ Brisbane

Thanks to everyone who came to see us at the recent USANZ Convention in Brisbane. We underestimated the demand for our booklets and we were out of stock by Monday lunchtime. All who requested copies to be mailed should have received them by now. If you need copies of our Patient Guidebook or Urinary Diversion booklet just send us a request at contact@PROTECTED.  

Congratulations to Nish L, an International visitor, who won the guitar that was donated by The School Locker!

USANZ Brisbane Photos

May is International Bladder Cancer Awareness month

International Bladder Cancer Awareness month

International Bladder Cancer Awareness month starts today! Throughout the month of May, we will be working double time to make the community #BladderCancerAware!

We hope everyone takes some time during May to highlight Bladder Cancer in your workplace, on your social media, with your friends, at clubs… anywhere you can! Start the conversation today on bladder cancer.

Recent International Statistics suggest more than 40% of Bladder Cancer patients don’t survive. We can save so much heartache through early diagnosis. So let’s all get the “Blood in pee” message out loud and clear in May.

Official Hashtag

The official hashtag for Bladder Cancer Awareness month is #BladderCancerAware ~ please use it on your Twitter, Facebook and Instagram in May!

Bladder Cancer Awareness Poster

We have created a new A4 poster you can download and print or we can post you copies – please email the team at contact@bladdercancer.org.au

Walk For Dan

Our efforts in May will culminate in the epic Walk For Dan on Sunday May 26th in Melbourne. Register now at www.bladdercancer.org.au/WalkForDan. A brisk Sunday walk (4.2km) and you’ll be home for Sunday lunch! Please come and support this great initiative.