Urology Week

This week is Urology Week!

Urology Week is an annual international campaign

Urology Week is an international campaign for increasing awareness of urological conditions and treatment. This year (26-30 September 2021) the focus is on blood in urine as an indicator for bladder cancer.

We encourage everyone to spread the word about blood in urine and how important it is to discuss changes in urine colour with one’s GP.

Early detection of bladder cancer is very important.

To help raise awareness the hash tags to use are #urologyweek and #bladdercancer

Or print out some posters for your work place, club or school. Free Downloads Here

The main message is:  Blood in urine, it’s bloody serious! Improve your quality of life with the help of your urologist.

To learn more about Urology Week check https://urologyweek.org/

BladderCancer.org.au Spring 2022 Newsletter

Hi Everyone,
 
After a very successful USANZ Exhibit on the Gold Coast in July, and a new financial year ahead of us, our charity grows ever stronger, supporting patients and medical professionals involved in bladder cancer.
 
Our updated free Procedure Guides were a big hit at USANZ. You can download these for free. We also have new stock of patient Guidebooks, Urinary Diversions books and Bladder cancer Care Plan sheets.
 
Email us at contact@bladdercancer.org.au to order.

Donations

Please, we get no Government funding and we have big projects that need support. Please consider a small (or large!) donation: www.bladdercancer.org.au/donations

Urology Week

26-30 September is Urology Week supported Internationally through the European Association of Urology (EAU). In 2022 their focus is Bladder Cancer and the strong blood in urine message. There are three fantastic posters here you can download for free from our web site.

It's Bloody Serious - Poster
More Posters

New Board Member

Dr Sachin Perera is one of the newest members to join the bladdercancer.org.au board in 2022. As an aspirational Urologist Sachin works closely with leaders in the field to deliver research and clinical services in one of the world’s preeminent centres for excellence in Urology.
Read more…

Dr Sachin Perera

WBCPC Forum

On the 8th September the much anticipated World Bladder Patient Forum is being held in Paris. You can attend on-line or in person. Take two hours out of your schedule to log in. Register Here

WBPC Forum Agenda

UAA 2022

The Urological Association of Asia Congress is to be held October 5-8 in Sydney at the Convention Centre. BladderCancer.org.au will be there and we are giving away a great Aussie Flag Electric Acoustic Guitar in a case. Valued at $599.00 drop by to our booth for a chance to win!

Australian Flag Guitar Image

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New Board Member – Dr Sachin Perera

Sachin Perera is one of the newest members to join the bladdercancer.org.au board in 2022. Sachin is a junior doctor based at the Royal Melbourne Hospital and Peter MacCallum Cancer Centre in Parkville, Victoria with a focus of practice in urology.

As an aspirational Urologist he works closely with leaders in the field to deliver research and clinical services in one of the world’s preeminent centres for excellence in Urology and is currently completing his Master of Surgery through the University of Sydney with Professor Nathan Lawrentschuk.

As part of our team Sachin will take on the Social media and Engagement portfolio bringing in experience from previous leadership roles in Hospital based environments. He is excited at the opportunity to join the Bladdercancer.org.au team during this transition point in the foundation and hopes to continue their success into 2022 and beyond.

Dr Sachin Perera

Bladder removal

I have to have my bladder removed plus nymph gland and all other parts attached to bladder. I’m not looking forward to this at all but believe I have to have it done to get rid of this awful cancer.

Would love to hear from those who have had this done and how they coped with it all. Thank you.

Nana Heather

USANZ22 EKO Guitar Winner

The Bladder Cancer Australia Charity Foundation guitar prize is fast becoming a popular convention must do at at USANZ. Delegates visiting our convention booth for our latest bladder cancer patient literature and other resources also sign up for a chance to win our guitar prize.

The lucky winner this year is Nick Davies from Tasmania!

Nick gets to fly back home with his own EKO EVO III D EQ guitar. It features a classic Dreadnought cutaway body shape and a solid cedar top, mahogany back and sides, South American roupana fingerboard and bridge. The guitar is also equipped with the Fishman Presys Blend preamp and internal condenser microphone that makes this instrument suited to both stage and studio. Case was included for safe travel and the total prize valued at $899.00

BladderCancer.org.au founders Tony Moore and Professor Nathan Lawrentschuk with guitar winner Nick Davies.

BladderCancer.org.au at USANZ22

The Urological Society of Australia and New Zealand 2022 Conference

We are distributing our Bladder Cancer Patient Guidebook and other patient resources at USANZ22

Our booth also has a draw going for an EKO EVO III D EQ guitar valued at $899.00

Note that there are costs involved in attending a conference like this and hiring a booth where we can share our patient resources to a wide network and advocate for bladder cancer awareness.

We also launched our Bladder Cancer Nurse Project to try and find the funds for a pilot program. (More info about this project soon)

If you can spare a few dollars a tax deductable donation to help us pay for our costs at ANZUS22 it would be very much appreciated and help us to continue in our work!

Check out more photos and comments about USANZ22 workshops and activities on the #USANZ22 tag on twitter.

Read about USANZ (The Urological Society of Australia and New Zealand) on their website at www.usanz.org.au

USANZ22

My dad’s story

In April 2021 dad went to his GP as he was urinating blood. An ultrasound determined the presence of bladder lesions and he was immediately referred to a urologist. A biopsy in June 2021 confirmed dad had bladder cancer that penetrated the muscle. A very aggressive small cell carcinoma. The urologist consulted an oncologist who stated that the best course of action would be to have a combination of chemotherapy and radiotherapy treatment. Bladder removal was out of the question.

Dad completed his treatments in November 2021 and a further scan revealed lesions on his liver. The cancer was spreading and dad was booked for more scans soon after. Dad could not go through with it as he started to have severe back pain and could not lie down for the scan and strong pain killers and muscle relaxants did not ease his pain.

On 21 March 2022 dad was admitted in to palliative care due to his rapid deterioration. He slept in a sitting position for several weeks. Dad was becoming confused and the oncologist suspected that the cancer had spread to his brain but due to the pain he refused scans. On 8 April 2022 dad finally had a lumbar CT (in complete agony), but he could not sit through further tests, revealing the cancer had spread to his spine that caused several fractures causing his pain. Dad became unresponsive from 9 April 2022 and sadly, he passed away on 17 April 2022. Dad was 78.

Chiko

Embarrassing Affirmations (Video)

May is #BladderCancerMonth22 🗓️

We are challenging taboos and sparking conversations about most common symptom of bladder cancer – blood in urine. Embarrassment shouldn’t be what stops us from sharing the concern with others, especially a doctor. Some things we’re embarrassed about are harmless. Some, might not be.

If you see blood in your urine, need to urinate on a more frequent basis, or have what you think could be a UTI… #DontGoRed. Go to a doctor!

The topic of embarrassment is something that just about everyone can get involved in. We all have stories to share – Get involved ❗ Find out more about World Bladder Cancer Patient Coalition campaign and get involved 👉 worldbladdercancer.org/awareness-month #BladderCancer

BladderCancer.org.au Newsletter – MAY IS INTERNATIONAL BLADDER CANCER AWARENESS MONTH

#DontGoRed

MAY IS INTERNATIONAL BLADDER CANCER AWARENESS MONTH

NOW is the time to create an awareness promotion in your hospital, surgery or neighbourhood that you can launch on Monday next week. Bladder Cancer Awareness month can be a great topic for weekly team meetings.

Do a fund raiser in your neighbourhood. Put posters in urinals and on the back of toilet doors. Get a message on lift video screen in your office.

We can design things to suit you and you can download lots of stuff from our web site for FREE to promote our awareness month.

#DontGoRed is the WBCPC hashtag for the month.

If you need booklets for your surgery please email us at contact@bladdercancer.org.au

Social Media for May

Stay tuned to our Facebook, Twitter and TikTok pages to see more Bladder Cancer Awareness materials you can share during the month including new videos and awareness tools from our partners at the World Bladder Cancer Patient Coalition.

MCG Lunch

MCG Bladder Cancer Awareness Month

Our annual fund raising lunch at the Melbourne Cricket Ground (MCG) has been a highlight of Bladder Cancer Awareness month. Those who have attended in the past know it’s a great lunch in a spectacular dining room. But this year we were unable to get the room. A handful of us are going for lunch at the MCC on Wed 25th May to maintain the tradition! If you’re interested we might find a space, but it is very limited seating. contact@bladdercancer.org.au

USANZ on the Gold Coast

USANZ on the Gold Coast starts on June 25th and one lucky delegate will win this guitar. Drop by the BladderCancer.org.au table to enter the draw!

The EKO EVO III D EQ guitar features a classic Dreadnought cutaway body shape and a solid cedar top, mahogany back and sides, South American roupana fingerboard and bridge. The guitar is equipped with the Fishman Presys Blend preamp and internal condenser microphone that makes this instrument well suited both on stage and in studio. Case included. Valued at $899.00

BladderCancer.org.au

We get no Government funding. Please consider a fully tax deductible donation here: www.bladdercancer.org.au/donations

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Micropapillary Carcinoma Bladder Cancer

After several GP visits and Urologist visits for frequent and painful urination it wasn’t until almost six months later my husband was diagnosed with Stage IV bladder cancer on 27/5/21. It was a very rare and aggressive form known as Micropapillary Carcinoma Bladder Cancer. His treating Urologist hadn’t seen this type since 2006 and his treating Oncologist since 2014. My husband had never smoked which is apparently a leading cause for bladder cancer.

Less than a week after diagnosis he had ensured a seven hour surgery to remove his bladder, prostate and eight lymph nodes of which the cancer was in seven of them. There was a six week recovery report before chemo could commence.

Four cycles of chemo were required however after only one, my husband was admitted to ICU with lungs full of blood clots. Blood thinners then created other complications which resulted in 33 nights in hospital. It was decided chemo should not continue due to serious life threatening complications.

Mid September 2021 immunotherapy was commenced (Avelumab). These were administered every 14 days via his port. Mid November a PET scan was done and it was the first scan done since first diagnosed with cancer back in May (not sure why there was such a long gap).

On 25/11/21 we received devastating news that the cancer had spread to my husband’s bones, further spread of the disease in more lymph nodes and in the area where his bladder and prostate had been removed. We were advised we had 6-12 months based on how aggressive his type of bladder cancer was.

My beautiful husband lost his fight eleven weeks later and passed away on 10/2/22. He fought til the end to be with our family. He will forever be 56.

BladderCancer.org.au News – Autumn 2022

Hi everyone,

Another season arrives with hope that we can resume normal lives with COVID. It’s been a trying time for everyone, but especially for the medical fraternity, and patients waiting for pain relief through surgery. Let’s hope that another COVID variant and subsequent wave doesn’t interrupt our recovery. We are flying the Ukranian flag this edition in support of those brave people.

CONVENTION UPDATES

Good news that events appear to be going ahead in this COVID safer world.

UROGP, the annual symposium bringing doctors and nurses up to date with all the latest in the world of Urology, goes ahead on Saturday March 25th. You can register here: urogp.com.au

USANZ, the urological community’s annual event will be held on the Gold Coast 25-28 June. All the details here: www.usanz.org.au/event/usanz-asm-2022-gold-coast

BLADDER CANCER PATIENTS can earn $$$$

There are 2 opportunities this month for bladder cancer patients and survivors to earn some money or vouchers by participating in surveys. One is for METIS Healthcare Research and the other is a Monash University study.

NEW BLADDER CANCER THERAPY

Dickon Hayne, Professor of Urology at the University of Western Australia, has been conducting trials on a new drug that is injected into the bladder. Read more

BLADDER CANCER & SMOKING STUDY

A recent study gives more weight to smoking being a major factor in bladder cancer illness with 44 percent of future bladder cancers attributable to smoking. Read more

NEED BC PATIENT GUIDEBOOKS for your surgery? Just email us at contact@bladdercancer.org.au

Donations

We get no Government funding. Please consider a fully tax deductible donation here: www.bladdercancer.org.au/donations

Subscribe to this newsletter

Bladder Cancer & Smoking Study

This recent study by Marc Diocera gives more weight to smoking being a major factor in bladder cancer illness.

Study Details

Substantial changes in the prevalence of the principal kidney and bladder cancer risk factors, smoking (both cancers) and body fatness (kidney cancer), have occurred but the contemporary cancer burden attributable to these factors has not been evaluated. We quantified the kidney and bladder cancer burden attributable to individual and joint exposures and assessed whether these burdens differ between population subgroups. We linked pooled data from seven Australian cohorts (N = 367,058) to national cancer and death registries and estimated the strength of the associations between exposures and cancer using adjusted proportional hazards models. We estimated exposure prevalence from representative contemporaneous health surveys. We combined these estimates to calculate population attributable fractions (PAFs) with 95% confidence intervals (CIs), accounting for competing risk of death, and compared PAFs for population subgroups. During the first 10-year follow-up, 550 kidney and 530 bladder cancers were diagnosed and over 21,000 people died from any cause. Current levels of overweight and obesity explain 28.8% (CI = 17.3-38.7%), current or past smoking 15.5% (CI = 6.0-24.1%) and these exposures jointly 39.6% (CI = 27.5-49.7%) of the kidney cancer burden. Current or past smoking explains 44.4% (CI = 35.4-52.1%) of the bladder cancer burden, with 24.4% attributable to current smoking. Ever smoking explains more than half (53.4%) of the bladder cancer burden in men, and the burden potentially preventable by quitting smoking is highest in men (30.4%), those aged 2 standard alcoholic drinks/day (41.2%). In conclusion, large fractions of kidney and bladder cancers in Australia are preventable by behaviour change.

What’s New?

Smoking and obesity are leading risk factors for cancers of the kidneys and bladder. In many industrialized countries, however, the proportion of kidney and bladder cancers attributable to these factors relative to one another may be changing, owing to recent declines in smoking and increases in obesity prevalence. Here, analyses of contemporaneous exposure prevalence data show that in Australia, body fatness is surpassing smoking as the leading modifiable risk factor for kidney cancer burden. Overweight and obesity accounted for 28.8 percent of the country’s future kidney cancer burden. Meanwhile, 44.4 percent of future bladder cancers remain attributable to smoking.